RARE BLEEDING DISORDER PATIENT CHARTER NOVEMBER 2021
The development of the Rare Bleeding Disorder Patient Charter was initiated and funded by Takeda. This document was developed using insights from The Haemophilia Society, people with rare bleeding disorders and interested health care professionals. Participants received an honorarium from Takeda for their valuable input and advisory contribution into the development of this Patient Charter.
The Rare Bleeding Disorder Patient Charter was developed to articulate where improvements in care for people with rare bleeding disorders (PWRBD) are most needed.
“Having the right conversations with healthcare professionals is vital to enable an active life"
Kate Burt, Chief Executive of The Haemophilia Society